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Friday, March 6, 2009

Waiting,waiting,waiting.

The waiting game continues with Kal still unable to get on ward.With others kids i know also waiting for beds,they can't make any promises for tomorrow either.Who knows how many other kids are waiting.The unfortunate part is i don't see how anything is going to change anytime soon.I have heard that there are plans for a new,much bigger oncology unit sometime in the future.We'll be long gone before that happens.

We had a meeting with Dr Stalley this morning and while he was very happy with his progress he did explain to Kallan that it's going to take him a long time and a lot of effort to get movement back in his arm and also that he'll never get full movement back.It wasn't anything Kal was unaware of but he went into little more detail as to why.He also said that they'll look at doing an extension of his prosthesis just after his chemo is finished.What they do is find the correct spot on his arm,make an incision and then get what Dr Stalley described as "a long allen key type of device" and give it a few turns to what ever length they need.When they first said "growing prosthesis" i always wondered how on earth it all worked.At our meeting with him last month he explained how it all works and i was pretty amazed actually.

Kal's getting a few visitors over the weekend so i almost hope he goes another day without a bed.Typical though,one minute I'm having a whinge about no beds and now I'm hoping for another day.Anyway whatever happens,happens and i certainly won't be knocking a bed back if it comes up.

3 comments:

Anonymous said...

That's good you're having a good social weekend Kal. It must be so frustrating for everyone concerned with the delays in treatment. It's a pretty poor situation for a country like Australia. There's enough money for the slickest looking medicare offices you've ever seen with the latest in equipment, yet they haven't got enough resources to treat children with cancer in a timely fashion? Doesn't make sense; funding mismanagement on a grand scale I reckon. Anyway - I hope it all works out over the weekend and it's a good one for you all. love K, M, I & S xxxx

Anonymous said...

Bed or no bed we're coming tomorrow the kids are so excited bout seeing you kal not to mention Uncle steve & me even bringing Lyn Steve's mum with us she has been really interested in your progress from the word go.Can't wait to see u

Love Aunty Lee

Samuel Procter said...

Hi Kal, I was just on the net and came across the sport. The West Tigers played a trial match against Shellhabour and the Tigers won 70 to 4 now thats a thrashing. Well what can we say their are the greatest team. Samuel doesen't think so he goes for those girlguides. From Leigh Procter